I read and reposted an excellent article this weekend on facebook. While I reposted it for its important content, I saved it because it echoed the very thing that drives me:
Not All Butterflies Are the Same.
Not all of us with Fibromyalgia (FMS) are the same.
Our FMS varies, our personalities vary, our preferences vary, the circumstances of our lives certainly vary-- thus what we are looking for to help us varies. We certainly all need the most current, accurate, helpful, etc. information, but the form that information comes in must be varied. We certainly all need tips, tools, worksheets, etc. to assist us, but their formats must be varied.
This is not a new concept to me--I found it to be true very early in my quest to help others with FMS. I adjusted my approach to dealing with others with FMS. I changed how I wrote. I changed the type of tools I put together. I changed the type of meetings I had and talks I gave.
It is not a new concept to those of us who are blogging, speaking about, writing about, and increasing awareness about FMS--and that is why there are so many of us yet most of us are still able to develop a following.
I am not necessarily talking about those who are seeking treatment alternatives other than those offered by main-stream medicine, although this certainly applies to them as well.
I not only understand and empathize with these people, but I have a name for what they are seeking: fibroBASICS. I even have a plan for how to provide it. I have a plan for how to provide what they are looking for beyond the first few steps, but also what they will need way down the line. My plan even goes beyond what other Butterflies need...
But I have FMS--I cannot implement that plan on my own.
The good news is, the internet is full of other people--voices--like mine, who also recognize this need. I call these fibroVOICES. I see that our collective voices can be used to drive more than the current goals in the "Fibro-world". I have a plan to bring our voices together, to be heard as one voice--fibroVOICE to meet the needs identified above.
I want to be clear--I am not criticizing any of the existing organizations or their goals. I am not suggesting shortcomings in their leadership or any failures of any kind. Their work has been invaluable and will continue to be so. Because of it, all of our fibroVOICES exist. These established organizations need to continue down their current paths, for the benefit of all of those with FMS. But time and experience has revealed a need to build upon their work. The existence of the variations in Butterflies has created the need to compliment their work.
While these organizations, writers, bloggers, etc. are doing invaluable work, their focus is not the same as mine. They create tools, workbooks, guides, worksheets, etc. but they do not meet the needs of the Butterflies I am talking about. Their focus is scholarly, research-driven, awareness-driven and their items reflect that. The Butterflies I am talking about are overwhelmed by these. There is nothing wrong with the items--but there are Butterflies with different needs.
If you are one of the Butterflies who recognizes this need as well, please contact me. I am looking for like-minded Butterflies--and even non-Butterflies (non-fibro people) to focus on building upon and complimenting the existing works and organizations. I want to combine our fibroVOICES --VOICES of all kinds such as nutrition-centered, natural supplement-centered, alternative treatment-centered, conventional treatment-centered--into a stronger, goal-centered, coordinated fibroVOICE.
To clarify on "like-minded", I will spell out more to-the-point what I am thinking.
These are big goals, and again, I have FMS--I cannot accomplish them alone. However, I know there are others out there--other fibroVOICES--and I would like to hear from you. I want to form a team--fibroVOICE.
I would also love to hear from those of you who can relate to what I have said here. I would love to hear from you if you have been looking for what I am calling fibroBASICS. I would love to hear from you if the goals I have set make sense to you.
My email is firstname.lastname@example.org
Blessings to all Butterflies, of all varieties!
LIVE your fibroLIFE to the FULLEST!