Why I'm Open and Honest About LIVING My fibroLIFE

Another blogger with chronic health issues recently posted about her friends saying she writes too much and too often about her health. Boy, have I ever heard that one! I have found that statement, and those like it, actually mean this:
They really do NOT understand WHY I write about Fibromyalgia and HOW Fibromyalgia makes ME feel. 

One could suppose that I am arrogant to think that, with all the other people writing about Fibromyalgia, what I have to say is important enough for a blog, a facebook page, or a book, etc. In fact, several years back, a well-known person in the "Fibromyalgia World" asked me that question. Because of my daily limited energy and the need to set my priorities, I have actually stopped several times. Each time I made up my mind to stop doing this, I would come across people not finding the help they are looking for in the existing options available to them. I am not arrogant, but I am unique.

• First and foremost, I have had an entire lifetime of personal experience LIVING a fibroLIFE, and ALL that entails. I speak from ACTUAL experience!
  
• I have had a career in healthcare.
  
• I have had training, certifications, and actual experience in creating tools and conducting adult education events.
• I write just like I talk--you do not need a medical dictionary to read what I write.
• I write about "real life" everyday issues.
• I reveal my own weaknesses and failures.
• I share the changes I have made that work and why I think they worked for me.
• I share the changes that I tried that did not work, and why I think they did not work for me.
• I share information about new ideas, developments, treatments, studies, etc. related to Fibromyalgia.
• I try to "keep it simple". Not because I think people with Fibromyalgia are dumb, but because I KNOW people with Fibromyalgia are tired, foggy, in pain, often depressed, and are tired of being handed an entire book to read and apply to their lives all on their own. If they could do that, they would not need the book!

Full disclosure here:
I wrote a couple of those books myself. I expected others to read them, work through them, and apply it to their lives. It took me over ten years and a lot of help to write them. It took me less than one day of looking at the works with "fresh eyes" to realize I was being totally unreasonable and impractical! So, yes, I made the same mistake I see so many others making. 

My goal now is to apply what I learned from my own former mistakes to help others who are facing what I have faced myself: Trying to find the best way possible to LIVE a fibroLIFE! That is why I have MesheaCrysup.com, fibroLIFE, and Fibromyalgia Made Simple.

fibroLIFE is dedicated to discussing anything and everything which will help others LIVE to their fullest potential in spite of having Fibromyalgia.
Fibromyalgia Made Simple is an offshoot of fibroLIFE dedicated to breaking down information about Fibromyalgia, getting diagnosed, tracking symptoms, etc. into small, simple blocks of information and actions that those with Fibromyalgia can actually face--can actually digest and work with.
MesheaCrysup.com is their common ground. It also provides a place for expansion.

Folks, I struggle like each of you. Today, I accomplished a fraction of what I wanted to do. For once my head is clear of the fog--I know what I want to say and do--but the energy just is not there. Like you, I know that it is a rare day when both the energy is present and the fog is not.  I wanted to just cry. I wanted to just give up. I am so tired--so very drained. 

But, I also remember when I was so very ill and no one
knew why. I remember feeling so alone, lost, helpless, and hopeless. I remember the ten years of struggling basically on my own figuring it all out. I remember the few people online that were actually helpful because they were REAL and they really understood.

So, I dried my eyes and dug in my heels.
I write about LIVING my fibroLIFE...
I am open and honest about LIVING my fibroLIFE... 
because someone out there will benefit from it. 
If I help just one person, then it is worth it all! However those who know me know I never think small! Join me. Comment. Share the posts. Tell others about us. Working together, we can help many others, all around the world!

Thank you for sharing some of your precious time with me today.
Blessings!
Meshea


 

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